Just wanted to spread the word about Pseudo-Tumor Cerebri & Hydrocephalus
Monday, May 2, 2011
My Fight With Pseudo-Tumor Cerebri
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
center of pseudotumor cerebri
Blog Archive
-
▼
2011
(21)
-
▼
May
(21)
- Personalized Pseudotumor Cerebri Awareness Tee Sm-6X
- How do obesity influence a particular person health?
- In A Long-Standing Hydrocephalus Code For Cranial ...
- The Pseudotumor Cerebri Syndrome: Pseudotumor Cere...
- 59:365: Patient
- Pseudotumor Cerebri Symptoms and Treatment
- Most popular Pseudotumor Cerebri auctions
- Pseudotumor Cerebri Gone--MD Baffled
- Pseudotumor Cerebri
- My Fight With Pseudo-Tumor Cerebri
- WXXI Reachout Radio - New Beginnings
- Hypertension King- How to Lower Blood Pressure Nat...
- No more redness. see
- What Are The Phases Of Pressure Ulcers ?
- Pressure Ulcers: Prevention, Care and Management
- Blood Pressure Reduction Guide - * $18.67 Payout! ...
- Caring for Pressure Ulcers pt 2 of 4
- Home Health Diagnosis Coding: Pressure Ulcer or De...
- Guide To Pressure Ulcers And Pressure Ulcer Grades
- New International Guidelines on Pressure Ulcer Pre...
- Caring for Pressure Ulcers pt 1of 4
-
▼
May
(21)
Designed by Earthquake Disasters
| Coral Reefs
Bloggerized by Free Blogger Template
25 comments:
i was dianosed with pseudotumor cerebri in 2008 when i was just 16. i was very scared and didnt know what to exspect. i went to a brain doctor to rule out brain tumor then go a spinal tap. now i suffer from major headachs everyday and theres nothing i can do. the doctors want to wait for surgary until i absoultely need it which might be sometime next year. i hope one day they will find a cure. noone should ever have to go though this. but like they say what doesnt kill us only makes us stonger.
Hello! I too have pseudotumor cerebri. I was dignosed in 2000 and at the time was a full time student and worked full time. i was very scared. my headaches were extreme and my vision was completely jacked up. i lost 80% of vision in my left eye. I also had several lumbar punctures and was placed on all kinds of meds (horrible and personality changing). in 2001 i had surgery to place a ventricular peritoneal shunt. things are well now. if anyone wants to talk, email me fanofdmb@gmail.com
I was diagnosed with pseudo tumor cerebri in January of '08 when I was 15. I was terrified and didn't know what to expect or what to do. I go into the hospital every 3 months if not a little less or more. I have gone thru so many spinal taps & blood patches. It's definitely an everyday struggle but I have been fighting everyday since then and will continue until the end. :) It's hard to explain it to my friends but they don't completely understand of course. I hope you get better very soon!!! =]
Stay strong and keep up the fight. You are not alone.
@Believe21406 it went really good, my headaches are gone completely and i dont get the white spots in my eyes anymore.. my hair is growing back pretty fast and im getting use to the bump on my head and the tube running down my neck
@bethnewsom1 Hey Beth, how did your shunt surgery go??!?!!?!!?! Is the shunt helping?? I will pray for a quick recovery! Hope all is well!
@odieohmylove I'm sorry you have to go throught this :( There REALLY needs to be more awareness about this....there needs to be a cure!!! How did the specialist go?? How was your spinal tap??! I will pray for you, hope all is well!!!
@PoeDiva Ahhh I am so sorry you have to go throught this :[ Especially since your husband can't be with you =/ Howe did everything go??!?! I will keep you in my prayers, hope all is well!!!!
@cjhudso Oh nooo, I'm so sorry to hear that :(:( Thank God the Diamox is helping you though!!!! Sorry it took so long to get back to you, I've been in and out of the hospital my self =/ How did your neurologist appt go??!
@Believe21406 i went to my eye doctor, my optic discs were not hemmoraging like last time, but they were swollen. It has indeed returned. She has me back on the diamox. 1000 mg a day. horse pills lol. i go to the neurologist on the 8th, and im hoping nothing else really happens, because the medications seem to be helping me 100%. for some people, this thing goes away, for others, it dont. sometimes just staying on the meds is a way to go. seems like that will be my case, but hey im no doctor.
I went for a routine eye exam and they told me I might have the same thing. I go for my cat scan and spinal tap in two day. Im scared and my husband cant go with me cause he is training in the military. You video is so inspiring to me. You are truly a blessed miracle. God Bless You
My dog chewed my glasses and I had to go get new ones, My last eye exam was 3 yrs ago so the dr gave me a new eye exam, dialated my eyes, and said she thinks I have pseudo tumor cerabri, I have to go to the specialist on monday and get a spinal tap. I am so scared and nervous. :(
i have Pseudo-Tumor Cerebri. im having my shunt surgery tuesday
@MsPrettyCute Yes it is inspiring, I wish I had something like this when IWas diagnosed 2 years ago! I hope you're doing well......I would love to ehar your story!! Dream, fight, Believe :)
@xxMusicMassacre Oh nooo, I'm so sorry to hear that :(:(:( I was daignosed 2 years ago, and I was SCARED to death when I found out. I wish I had something like this to look at, to know it will be okay. If you have a facebook please add me, Christine Delke :) I would love to hear your story...keep on keepin' on! Stay strong :)
@cjhudso Yes I know the feeling :( I was the same way, they said my pressure was so high if I would have waited any longer, I would have had a severe stroke, if not worse =/ But thatnk God we're still here today!!! Do you have a shunt? How did the doctor go??!!? If you have a facebook, please add me! I am friends with a lot of people who have the same thing, it's SUCH a great support group! Hope all is well!! <3
i hate that anyone has this. I myself, suffer from the same thing. i have been 'rid' of it for about 2 years now. however, here recently my symptoms have returned. and i am going to the doctor tomorrow to see if it has 'returned'. when i was first diagnosed with it, i had waited so long and hoping that it was something that would go away, that they told me had i waited another day, the pressure was so great, it probably would have killed me. so thank god that i am still here today.
I actually just got diagnosed with this last week... :'(
You're story/ video is inspiring to me, that I can get through this.
:)
My wife has it and she suffers so much. You are not alone.
Thank you for this video. I was diagnosed a few months ago, and I'm terrified. It is hopeful to see someone with this condition doing well.
@leighspire I'm so sorry it took so long to respond!! It's been a crazy couple of months! Lol. I am doing okay now...my neuro-opthalmologist started me on a new medicine called Diamox, it's supposed to keep the pressure in my brain down. I see him on Jan 4th to see what the next step is!!! I'm pretty sure he is going to say shunt revision, but if it helps, then I'm ready!! It's very unfortunate, but I have lost friends too, nobody understands :( My motto is: DREAM. FIGHT, BELIEVE =]
@tiffanyheth Yes! I totally know the feeling, I'm symptomatic everyday, I just wish there was a cure!!!! Just keep praying, I hope you only go uphill from here!! : )
@rosesofsunshine3 Thank you so much!!! It's very tough, but it has only made me a stronger person!! Gosh I am so sorry to hear that :( How old is your friend? Does your brother still have a shunt, doing well? Tell them to find me on facebook, I have lots of friends with shunts and pseudo-tumor cerebri...it's great for support! Christine Delke :) God bless you too!!!
I just found out one of my friends has pseudo-tumor cerebri and I have a brother who's had a shunt... thanks for making this video. You are quite inspiring! Awesome choice of music too:) I hope you keep strong and I wish you the best in all you do! God Bless:)
Thank you for this video. I'm in tears after watching that. I was diagnosed one year, four months ago, and have undergone 6 surgeries, but I'm still symptomatic. I have a strong belief in God also. Its difficult to continue pressing forward!
Post a Comment